Once again, the issue over a simple thing such as coloured paper is surface again, it so stupid when it makes a different to a child learn and future now, it like ask a person in wheelchair to walk when they can’t so same with a child with Irlen syndrome they can’t use white paper so they need their coloured paper
It makes me so angry because I know that how much of different coloured paper as make to my learning so stop being stupid people started given children’s with Irlen syndrome they coloured paper as they deserve to have a brighter future now.
So, why make it hard for a child with Irlen syndrome to learn at end of day just a change of colour which is so simple too.
I never imagined that my hard work is paying off with raising awareness of Irlen syndrome ,I given a talk back in March to my local Rotary club I found out today that one member granddaughter has been diagnosed with Irlen Syndrome.
Which make me so proud of given that talk and I am helping a local club educating their young people about Irlen syndrome which is brilliant because they are doing a display about Irlen syndrome, some of the youth workers have say “ I never hear of this before”
It amazing to be doing my very best for people with Irlen syndrome and raise awareness of this condition and I hoping help few more clubs educating their young people about Irlen syndrome.
Being an Irlen warrior is incredible and worth after I set up my own campaign back year called the voice for people with Irlen syndrome , which has gone from strength to strength now and I have support from certain people now.
Last Thursday I went to a volunteering event where I saw my AM Dawn Bowden and I told her about the issue with exam paper not being on coloured paper for people with Irlen syndrome, who are doing national test, It was a surprise when she said that the Welsh Assembly will be looking this issue and what can be done.
I am so pleased about the fact that the Welsh Assembly are looking into this issue all thank you to Dawn Bowden.
It great to have the Welsh Assembly taken Irlen syndrome seriously .
It started back last year when I had a met with Gerald Jones about the issues we are facing daily, basic then we decided to set up an action plan to taken my campaign forward we had to wait for a new AM which turn out to be Dawn Bowden so we had a meeting where Dawn say that we hold an awareness event during a very special week.
This year even more meeting with my councillors to start working on my wish list.
As an ambassador, it is an honour to meet important people on behalf of people with Irlen syndrome and make them understand Irlen syndrome is a seriously condition and the impact is massively .
We ‘ve all heard of autism and cancer while there is still much to learn about and many lives are affected or lost by it, there are lots of charities to these people and their families and lots of money go into them, but I wish the same could be said for Irlen syndrome.
Unfortunately, professionals don’t understand what Irlen syndrome is or the needs of those with the condition so we need them to be looking at the big picture and started listening to us when we say that Irlen syndrome is nothing to do with the eyes but our brains
With the general election, it time to make the candidates aware of Irlen syndrome.
I am looking forward working with Rhonda Braithwaite and Lee Davis over next few years get Irlen syndrome out there .
When I found out that I had Irlen syndrome back in 2012, It was a rollercoaster of a journey which made worse by not knowing what Irlen syndrome was or having support, but only for me whole family and being told that I was a freak or stupid and that I had to wear blue tinted sunglasses, I went through a grieve progress of denial, anger, bargaining depression why me but we were told that Irlen filter would £500 but in 2013 It was worst year of my life my symptoms got worse.
Until I joined an online support and found some true heroes they funded my Irlen lenses then I finally accept having Irlen syndrome and learned that I didn’t need to be wearing blue tinted sunglasses and that didn’t cost £500 after all, I was totally shocked by the fact that no one had hear of Irlen syndrome so I decided to be brave started share my experiences with the condition.
It took a while to bring Irlen syndrome to the attention of AMs and MPs but finally I did it last year by going down Welsh Assembly where I come face to face with the person who first diagnosed me with Irlen syndrome I feel really scared about meeting her again but thanks to the work I have done on my past that I could enjoyed our day down the welsh Assembly.
Then this year I got Irlen syndrome up to Parliament for another event to raise the profile of the condition and educating MPs this time . I have learned to accept every part about my condition and manged it so yes I can be hard to accept a condition .
Remember everyone is different in own way so I have come overcame barrior to being brave and help other people with the condition now so I enjoy writing my blog now.
So Yes what I went through when I found out I had Irlen syndrome but now I am sharing my experience with people.
A another day that will go down in Irlen history ,which is an achievement and it one that all involved will never forget it ,It was a huge opportunity for us .
On Tuesday we went to the House of parliament for our event which hosted by my MP’S Gerald Jones for Merthyr and Rhymney we went though Cromwell gate and security then we went into our room.
where me and my friend Hannah given our speeches about living with Irlen syndrome and experiences we meet Stephen Doughty for Penarth and Carolyn Harris for Swansea
Photo credit by Up and Coming .
we would like Thank -you Gerald Jones MP’s for hosted our event and being our shining star alongside Dawn Bowden AM and I would like Thank-you Up and coming for taken photos of Our day .