Chasing Rainbow!

Well as I enter another year of trying to Irlen syndrome recognised in schools and the NHS ,which is excited and fresh new started for me and in my campaign called the voice for people with Irlen syndrome, which is amazing in so many ways that it has gone to important place like the Welsh Assembly and Parliament in two years of me set up the campaign because I didn’t like the way people with Irlen syndrome are being treated just like myself by important People , It was like we don’t have a voice .

So, I decided to get on the voice for people with Irlen syndrome back in 2016 it was lots of meeting with my MP and new am then to my surprised an Irlen awareness event down the National Assembly, which went amazing for first time at hold National Assembly for Wales.

 

Then last year go one step further by going up to Parliament was incredible just in two years of my campaign, which is amazing to have education AM’s and MP’s in just two years of my campaign go live .

 

Well I have stay positive and work-hard to make it happen no matter what because I believe people with Irlen syndrome deserve to be treated with respect and with their rights . so, Yes we are different but we have same rights anyone .

Advertisements

Trying to make a different for people with Irlen syndrome across the country!

I never imagined 2017 would be another wonderful for people with Irlen syndrome,it’s been one of massive opportunites like Parliament and BBC Wales News interview  which has made me realised that I need to be proud of all my hard-work for people with Irlen syndrome.

This year is being a rollercoaster of highs and lows for me personally but I have got through it now with some surprised long the way well worth every second of all the hard-work for people with Irlen syndrome.

I have been very fortunate to create awareness last year down the National Assembly for Wales and Parliament this year with the support of my Am Dawn Bowden and MP Gerald Jones for being our superstar in allowing us to education AM’s and MP’s about Irlen syndrome and the impact on a person life.

It’s has been an honour for me to able to take on the fight for people with Irlen syndrome and raise awareness in anyway I can.

They are few people that have made 2017 a another great year for people with Irlen syndrome , Thank-you to Gerald Jones and Stephan doughty and other MP’s for being interested in Irlen syndrome and to my friend Hannah Miller.

A special Thank-you to Alan Penn for coming into my life at all mostly the end of the year but I am gratefully to have him in my life now.

Bring on 2018 now more ever raise awareness of Irlen syndrome !

Being Proud!

I  have only realised the true meaning of being proud, because I haven’t not always being proud of the things I have done , well I thought share some of the things I am proud of from this year !

a photo with gerald Jones MP Parliament!

When I found out back last year that my campaign called the voice for people with Irlen syndrome was going up parliament I was so shock but we had a massive opportunity to education MP’S about the condition .

Creating a something for young People to understand Irlen syndrome!

I had an idea to created something for young people to understand irlen syndrome ,so I ask a group who have affected by Irlen  just like myself , It took few month but we did it, I would like thank-you to Hannah Libby Lilly and Lilly Mum for help me creating the toolkit.

Do my first ever Interview with National media ,BBC Wales News

After I got in contacted with BBC Wales News about doing an interview about Irlen syndrome and my experiences , On 8 september I was interview alongside Alan Penn clinc director and personally trained by Helen Irlen, which was amazing , I would like say a massive thank-you to Alan Penn for being my side for it

.

Travelling on my own!

During our special week I travel down cardiff  on my own for my friend Hannah event in Pecond campaus for her to raise awareness of Irlen with students and staff , which is something that I never done before ,But all thanks to my new Irlen lenses !

There are few special people who make me feel proud of the things I have done this year , they go Gerald Jones MP  Hannah Libby Lilly , Lilly mum , But they is one person that as make the last two things positive  Thank-you Alan Penn!

 

 

 

 

Being ambassador for Irlen!

When I received my Irlen ambassador certificate in 2015, I never imagined that my hard-work would pay off ,it came at time when I thought no one liked my efforts , then I realised that my efforts will help others know that there is no need to struggled when there is a simple solution.

It’s taken a while for me to feel strong to forget what some people have say about me being ambassador for Irlen but I realised that no matter what my efforts have been noticed now.

Now I know that I am represented the Irlen community at events and meetings too.

 

This year I have been came an ever stronger Irlen ambassador because I have the support through my own campaign called the voice for people with Irlen syndrome.

 

Raising awareness of Irlen syndrome though my own experiences

It started a month early with an interview with the BBC Wales News, alongside Alan Penn clinic Director who was trained in America by Helen Irlen but as usually they got it wrong, then last Friday my blog called a colourful new world got share by the children comminutor and Disability Wales too.

 

It was a great started to our awareness week by Disability Wales for sharing about our special week, which was amazing week for me because I could help my friend Hannah with her talk for students and staff at Pencoed college.

 

Then I give my presentation to school governors which they were interested in have me into a teacher forms to give my presentation , it amazing as I thought no one would turn up , I would like Dawn Bowden AM for opening my event yesterday and my friend Hannah for doing her speech , which is a way into schools to educating the staff about Irlen syndrome .

 

There is one milestone from the week that is my favourite I manger to travel on my own down Cardiff with my new Irlen lenses.

A year since we went down the Welsh Assembly!

welsh assembly 2I never imagined that my campaign called the voice for people with Irlen syndrome, would go down to the National Assembly for wales, A year today we did just that we had an awareness event down the National Assembly for wales, which was sponsor my own Am Dawn Bowden, then we had an Irlen presentation by Stephanie Jamison, then we had two moving speeches from me and my friend Hannah about our experiences living with Irlen syndrome.

 

It’s was an amazing day and I still can’t that it a year today since I first enter the Irlen history for the first time, which is incredible for all involved in my campaign so far, the National Assembly for Wales is a bigger place in my heart where I give my first ever speech.

 

I would like thank-you my Am Dawn Bowden for allowing to get the chance having a special day down the National Assembly for Wales and to everyone involved that day .

 

 

Finally acceptable the last four year.

I couldn’t read or write property which make school difference and teachers thought I was lazy or not trying but I was trying so hard but nothing seemed to work I didn’t learn to read, after years of not able to read or write property, it all changed in 2012 when I got refel for an Irlen screening, where I was diagnosed with Irlen syndrome I was told to wear blue tinted sunglasses and use blue coloured paper aqua blue overlay.

 

In 2013 things took a turn for the worse until I joined a support group for people with Irlen syndrome and spoke to Jean” say that help us tried find funded for my Irlen lenses “then she found a wonderful group called Merthyr Mendicants, after they visit me and my parents we had to wait for their decision I was surprised when they say yes to funded my Irlen lenses.

 

In 2014, I meet my first diagnostician to see what colours I need for my first pair of Irlen lenses I made some good progress with them like given my first Irlen presentation to my classmates.

 

In 2015, I saw my first diagnostician again what colours I need for my second pair of Irlen lenses I didn’t realise that how things were supposed be like.

 

In 2017 I saw a new person called Alan Penn who is a clinic director who was trained in America by Helen Irlen. where I finally open up about how I saw the environment and that I couldn’t see full stops or dots for the letter I before I can really feel it with my new Irlen lenses, which has allow me to finally bring myself to acceptable the last four year of my Irlen journey