I have only realised the true meaning of being proud, because I haven’t not always being proud of the things I have done , well I thought share some of the things I am proud of from this year !
When I found out back last year that my campaign called the voice for people with Irlen syndrome was going up parliament I was so shock but we had a massive opportunity to education MP’S about the condition .
Creating a something for young People to understand Irlen syndrome!
I had an idea to created something for young people to understand irlen syndrome ,so I ask a group who have affected by Irlen just like myself , It took few month but we did it, I would like thank-you to Hannah Libby Lilly and Lilly Mum for help me creating the toolkit.
Do my first ever Interview with National media ,BBC Wales News
After I got in contacted with BBC Wales News about doing an interview about Irlen syndrome and my experiences , On 8 september I was interview alongside Alan Penn clinc director and personally trained by Helen Irlen, which was amazing , I would like say a massive thank-you to Alan Penn for being my side for it
Travelling on my own!
During our special week I travel down cardiff on my own for my friend Hannah event in Pecond campaus for her to raise awareness of Irlen with students and staff , which is something that I never done before ,But all thanks to my new Irlen lenses !
There are few special people who make me feel proud of the things I have done this year , they go Gerald Jones MP Hannah Libby Lilly , Lilly mum , But they is one person that as make the last two things positive Thank-you Alan Penn!
When I received my Irlen ambassador certificate in 2015, I never imagined that my hard-work would pay off ,it came at time when I thought no one liked my efforts , then I realised that my efforts will help others know that there is no need to struggled when there is a simple solution.
It’s taken a while for me to feel strong to forget what some people have say about me being ambassador for Irlen but I realised that no matter what my efforts have been noticed now.
Now I know that I am represented the Irlen community at events and meetings too.
This year I have been came an ever stronger Irlen ambassador because I have the support through my own campaign called the voice for people with Irlen syndrome.
It started a month early with an interview with the BBC Wales News, alongside Alan Penn clinic Director who was trained in America by Helen Irlen but as usually they got it wrong, then last Friday my blog called a colourful new world got share by the children comminutor and Disability Wales too.
It was a great started to our awareness week by Disability Wales for sharing about our special week, which was amazing week for me because I could help my friend Hannah with her talk for students and staff at Pencoed college.
Then I give my presentation to school governors which they were interested in have me into a teacher forms to give my presentation , it amazing as I thought no one would turn up , I would like Dawn Bowden AM for opening my event yesterday and my friend Hannah for doing her speech , which is a way into schools to educating the staff about Irlen syndrome .
There is one milestone from the week that is my favourite I manger to travel on my own down Cardiff with my new Irlen lenses.
I never imagined that my campaign called the voice for people with Irlen syndrome, would go down to the National Assembly for wales, A year today we did just that we had an awareness event down the National Assembly for wales, which was sponsor my own Am Dawn Bowden, then we had an Irlen presentation by Stephanie Jamison, then we had two moving speeches from me and my friend Hannah about our experiences living with Irlen syndrome.
It’s was an amazing day and I still can’t that it a year today since I first enter the Irlen history for the first time, which is incredible for all involved in my campaign so far, the National Assembly for Wales is a bigger place in my heart where I give my first ever speech.
I would like thank-you my Am Dawn Bowden for allowing to get the chance having a special day down the National Assembly for Wales and to everyone involved that day .
I couldn’t read or write property which make school difference and teachers thought I was lazy or not trying but I was trying so hard but nothing seemed to work I didn’t learn to read, after years of not able to read or write property, it all changed in 2012 when I got refel for an Irlen screening, where I was diagnosed with Irlen syndrome I was told to wear blue tinted sunglasses and use blue coloured paper aqua blue overlay.
In 2013 things took a turn for the worse until I joined a support group for people with Irlen syndrome and spoke to Jean” say that help us tried find funded for my Irlen lenses “then she found a wonderful group called Merthyr Mendicants, after they visit me and my parents we had to wait for their decision I was surprised when they say yes to funded my Irlen lenses.
In 2014, I meet my first diagnostician to see what colours I need for my first pair of Irlen lenses I made some good progress with them like given my first Irlen presentation to my classmates.
In 2015, I saw my first diagnostician again what colours I need for my second pair of Irlen lenses I didn’t realise that how things were supposed be like.
In 2017 I saw a new person called Alan Penn who is a clinic director who was trained in America by Helen Irlen. where I finally open up about how I saw the environment and that I couldn’t see full stops or dots for the letter I before I can really feel it with my new Irlen lenses, which has allow me to finally bring myself to acceptable the last four year of my Irlen journey
I never imagined that a new beginning would be around the turn for me but after a touch four year in my Irlen Journey, I found it hard to let go of the last four years of hell but I found a lovely man called Alan Penn who is willing to help me and support through it and my campaign which has led to me to be nomination for the disability Wales awards for my work for Irlen syndrome and the St David’s awards too.
It’s amazing that I have got national media interested in spread the word about Irlen syndrome, which is a great achievement for people with Irlen syndrome, Yes it an achievement that well worth it.
I am determined to carry on the fight to get Irlen syndrome recognised in schools and the NHS as it is important that people are aware of Irlen syndrome, because colour can transform lives.
Some people call me an inspiration to other countries like Canada and people with Irlen syndrome, which is incredible to be called an inspiration and a role model after all I have been through.
Having someone believing in me and my campaign for people with Irlen syndrome means the world to me
so Thank-you Alan Penn for a part in my irlen journey now and make it easy taken my campaign forward .
I never imagined that I would get the national media interested in spread the word about Irlen syndrome , So I contact the BBC Wales News and they would happy to do an interview with me.
Last Friday I was interview alongside Alan Penn clinic director , which was amazing to spread the word about Irlen syndrome.
It was the first time I meet Alan Penn and worked him he so amazing and thank-you for doing my assessment .
I would like thank Sophie and Jess from the BBC Wales News for helping spread the word about Irlen syndrome.