Our ambassador is making us all proud of her!

March is a busy month for me and I have putting together some of the things I have done has Irlen ambassador , They have been some huge opportunity like going to Parliament on Tuesday.

I have manged to get my local authority to change the ballot papers from black text on a white background to black text onto cream paper with some help from counclier Mike O Neil .

I also given my speech to my local Rotary club, which went down a storm and members found it very interesting  . It was an honour to given it to them

With only two days before our day in Parliament which is amazing to even be going to Parliament to educating MP’s about Irlen syndrome and the issues we are facing on a daily basic ,I will be advocacy again for people with Irlen syndrome

My campaign is really starting to taken off now this year which I am delighted about and with my hard work  one day People with Irlen syndrome will have equality and respect .

 

The campaign that can make a difference!

When I decided to set up my own campaign called the voice for people with Irlen syndrome, I never imagined that it would be the starter of something special for people with Irlen syndrome, it is a great honour to take on the fight for everyone with Irlen syndrome and taking our concerns to my AM Dawn Bowden and Gerald Jones MP.

It is so amazing how much support I have gain for my campaign because every person with Irlen syndrome deserves a chance at a better life and educational, social.

 

The Welsh Assembly hold a special place in my heart because it where I give first big speech about living with Irlen syndrome and the issues we are facing

 

I am so fortunate have lot of support for my campaign ,It’s finally a year old now which is amazing now.

 

 

 

 

How the government treat us !

We are human being at the end of the day but we get treat like a piece of dirty just because we have a condition called Irlen syndrome, it really under fair when it a real condition that impact on everything but the government think it funny to say that they is not enough evidence to say that Irlen even exists.

Which is just being silly when we need their support and help can they never hear us, stop playing with people lives and future for god sake now

All we ask is for them to get us seriously because we are the voted of the future and It need to be recognised for how much it can affect people.

We would like ask the government this How can so many people be suffering from a condition that doesn’t exist?

 

 

 

 

 

Being a real Inspiration for people with Irlen syndrome!

I never imagined that I would be taken my campaign the voice for people with Irlen syndrome to Parliament, it is a huge opportunity to make MP’s aware of Irlen syndrome and the issues we are facing.

Most recently I have gained the support of councillor Mike O Neil which is great have support local and from welsh assembly, Parliament too and I find out that my diagnostician has a meeting with lifelong minster down the welsh assembly end of February

It all my hard work and effort is real paying off I push myself despite my difficulty that what people like about me and having a team of proof readers without I wouldn’t have ask to write somethings for youth mayor forum

so yes it time that I am happy with what I am doing for people with Irlen syndrome.

 

what the difference between wearing the glasses and not?

Just imagine not able to do everything that your friends can do because of having terrible symptoms like headaches or having teacher say not trying hard enough but you think is normal you think everyone see words moving on a page or in the environment

Until you are diagnosis with a condition called Irlen Syndrome and provided with individually created Irlen spectral filters , My friend Hannah is going tell us how they have change her life My reading speed is much faster now so can read a book faster and got more confidence and how I going tell my experiences They have help me set up my own campagin and go to senedd and now this year I am going up to Parliament all this in nearly years of wearing Irlen spectral filters

What the difference between wearing the glasses and not?

Just imagine not able to do everything that your friends can do because of having terrible symptoms like headaches or having teacher say not trying hard enough but you think is normal you think everyone see words moving on a page or in the environment

Until you are diagnosis with a condition called Irlen Syndrome and provided with individually created Irlen spectral filters , My friend Hannah is going tell us how they have change her life My reading speed is much faster now so can read a book faster and got more confidence and how I going tell my experiences They have help me set up my own campagin and go to senedd and now this year I am going up to Parliament all this in nearly years of wearing Irlen spectral filters

Some people think that Irlen spectral filters don’t work but for people with Irlen syndrome changing so many lives now

Really just read the success stories about Irlen spectral filters I am ready planning for Parliament which look like go up parliament late March

So join has I blog the jounery from planning the event to the day .

 

An Incredible year 2o16.

2o16 has been an incredible year not just for  me but everyone with irlen syndrome ,it’s been one of so many high and opportunities the steps in right  is hope that it wouldn’t be long before Irlen syndrome is recognition by the Welsh Assembly and the Government.

It’s been a year of bring Irlen syndrome to the attention of my local MP and AM which leaded to us go down to the Welsh Assembly , There are some experiences that are my favourites like go down to the Welsh Assembly and going to my first book launch of my favourite author.

They will be a meeting with the Health and Education cabinet secretaries in the new year

I have very exciting news to announce to my blog readers which I am so proud tell all of you I am kicking the start of 2017 in style by taking my campaign to get Irlen syndrome recognised in the NHS and schools up to parliament in the spring.

So join me has I make 2017 a another incredible year for everyone with Irlen syndrome.