Having Irlen syndrome can be changing and frustration on time because of the lack of support and funding for people with the condition, It’s one of the main reasons I started my own campaign called the voice for people with Irlen syndrome, It break my heart when I heard people with Irlen syndrome say that they can’t afford the simple tools that help in their lives . I know I am the lucky one and It’s so not fair that these people must struggled like this now.
Unbelievably that children’s and young people are struggled too because of the lack of accepted in the schools and support for children’s and young people to reach their full protentional would be a started for them.
It’s about time children’s and young people have support and accepted in their schools as it their rights .
I never imagined back in September when I had my third pair of Irlen lenses that I would really achieved things that I thought wouldn’t positive but I recently found out that I have achieved a double distinction in my last two Press GSCSE modules , Which has impressed me and the exam board too.
It was a shock to get incredible marks after not really achieved anything academic property before and get accept onto the a level Press course.
I am so happy to achieved things that I really thought wouldn’t positive before having my third pair of Irlen lenses now .
It make me so proud of myself for achieved things as my lenses have been a clear difference in me achieved things now in just six month of having them
It’s so amazing achieved what I wanted to achieved now all thanks to the Irlen Method and been to share on this blog post that I have winner best module for living with a condition and best student living with a condition too.
I would like say a massive thank-you to Alan Penn for help me being the best I can be now.
I never imagined that I would take Irlen® syndrome up to Parliament well I did just that a year ago which is incredible that I manger to get our voice heard and to education MP’s about Irlen® Syndrome and the impact on a person whole life and education too.
It was another day that will go down in Irlen history and it’s was all because I got invited to hold an Irlen® awareness event by my very own MP Gerald Jones as he knew how hard I had been working to raise awareness of Irlen syndrome.
It was an amazing day, we have a welcome by Gerald d Jones for Merthyr and Rhymney then two amazing speeches from me and my friend Hannah about our experiences with Irlen ®syndrome then we had a discussion about the issues we are facing .
I have say it was incredible opportunity to raise the profile of Irlen® syndrome which was amazing and I would like say thank-you to those that came to support me also my very own Gerald Jones MP but there is a wonderful group that is coming to end soon that had been there on two of my events called Up and Coming
Thank-you for taken the photos of both my events and films I am going to missed you.
In nearly three-year of my campaign called the voice for people with irlen syndrome ,which led to some amazing opportunity’s like Welsh Assembly and Parliament, I didn’t realise that would mean education AM’s and MP’s too , it was amazing to able to education them about Irlen syndrome and the impact on person whole life and education too.
It feel like an honour to be fighting for people with Irlen syndrome, those that are struggling with reading , learning , attention problems by letting them know there is a solution to their different.
Using my experiences to make sure that People with Irlen syndrome have their needs heard by important people ,It’s one of hard-work with some great result , for people with Irlen syndrome ,which is remarkable that in nearly three-years of the campaign .
There is a saying that as been a big part of my campaign , You are amazing and you are brave , you are strong , it been there is my campaign tried to success the best it can, Other people said” they are so proud of me” now the irlen institute are proud of me too
Which is so amazing to have other people say they are proud of me now ,It mean a lot to me .
When I decided to try raise awareness of Irlen syndrome after I came across the fact that not many people know about it or hear of it, I started at the time by giving a presentation to my classmates at a skill club then I got ask to do my presentation again for another group, I never thought would be started of something so special for people with Irlen syndrome, which lead to education important people like my own AM Dawn Bowden and MP Gerald Jones.
I have gone to important places like the National Assembly for Wales and Parliament and I have tried get the National media involved with a BCC Wales News interview but I didn’t turn out the way I hope it would.
It all went down in Irlen history as the better moments so far, I am still trying to make a different and go forward with what I want for a long time.
I am so proud of what I have done since 2014 now I am learn to be a stronger ambassador now with-out being frustration and stress now.
Well I will continue to fight for people with Irlen syndrome rights and respect, now Professionals are starting to listen to us all because of what I have done for people with Irlen syndrome.
Well as I enter another year of trying to Irlen syndrome recognised in schools and the NHS ,which is excited and fresh new started for me and in my campaign called the voice for people with Irlen syndrome, which is amazing in so many ways that it has gone to important place like the Welsh Assembly and Parliament in two years of me set up the campaign because I didn’t like the way people with Irlen syndrome are being treated just like myself by important People , It was like we don’t have a voice .
So, I decided to get on the voice for people with Irlen syndrome back in 2016 it was lots of meeting with my MP and new am then to my surprised an Irlen awareness event down the National Assembly, which went amazing for first time at hold National Assembly for Wales.
Then last year go one step further by going up to Parliament was incredible just in two years of my campaign, which is amazing to have education AM’s and MP’s in just two years of my campaign go live .
Well I have stay positive and work-hard to make it happen no matter what because I believe people with Irlen syndrome deserve to be treated with respect and with their rights . so, Yes we are different but we have same rights anyone .
I never imagined 2017 would be another wonderful for people with Irlen syndrome,it’s been one of massive opportunites like Parliament and BBC Wales News interview which has made me realised that I need to be proud of all my hard-work for people with Irlen syndrome.
This year is being a rollercoaster of highs and lows for me personally but I have got through it now with some surprised long the way well worth every second of all the hard-work for people with Irlen syndrome.
I have been very fortunate to create awareness last year down the National Assembly for Wales and Parliament this year with the support of my Am Dawn Bowden and MP Gerald Jones for being our superstar in allowing us to education AM’s and MP’s about Irlen syndrome and the impact on a person life.
It’s has been an honour for me to able to take on the fight for people with Irlen syndrome and raise awareness in anyway I can.
They are few people that have made 2017 a another great year for people with Irlen syndrome , Thank-you to Gerald Jones and Stephan doughty and other MP’s for being interested in Irlen syndrome and to my friend Hannah Miller.
A special Thank-you to Alan Penn for coming into my life at all mostly the end of the year but I am gratefully to have him in my life now.
Bring on 2018 now more ever raise awareness of Irlen syndrome !