When I found out that I had Irlen syndrome back in 2012, It was a rollercoaster of a journey which made worse by not knowing what Irlen syndrome was or having support, but only for me whole family and being told that I was a freak or stupid and that I had to wear blue tinted sunglasses, I went through a grieve progress of denial, anger, bargaining depression why me but we were told that Irlen filter would £500 but in 2013 It was worst year of my life my symptoms got worse.
Until I joined an online support and found some true heroes they funded my Irlen lenses then I finally accept having Irlen syndrome and learned that I didn’t need to be wearing blue tinted sunglasses and that didn’t cost £500 after all, I was totally shocked by the fact that no one had hear of Irlen syndrome so I decided to be brave started share my experiences with the condition.
It took a while to bring Irlen syndrome to the attention of AMs and MPs but finally I did it last year by going down Welsh Assembly where I come face to face with the person who first diagnosed me with Irlen syndrome I feel really scared about meeting her again but thanks to the work I have done on my past that I could enjoyed our day down the welsh Assembly.
Then this year I got Irlen syndrome up to Parliament for another event to raise the profile of the condition and educating MPs this time . I have learned to accept every part about my condition and manged it so yes I can be hard to accept a condition .
Remember everyone is different in own way so I have come overcame barrior to being brave and help other people with the condition now so I enjoy writing my blog now.
So Yes what I went through when I found out I had Irlen syndrome but now I am sharing my experience with people.